Tuesday, March 17, 2020

Isolation - Day 2

This scares THE ABSOLUTE SHIT OUT OF ME. 
They are not treating anyone with preexisting conditions. Cancer, transplant, heart disease, diabetes and more EVEN IF THE PATIENT IS YOUNG. That's half of the population!
Please! I'm begging you. If there's absolutely ANY way you can stay home, even for a few days, please please PLEASE do it. As someone who probably wouldn't qualify for one of the 5,000 ventilators that Canada currently has I need help to stay healthy. I'm staying in my home, probably for months. If you can take 2-3 weeks of holidays to help stop this thing in it's tracks please do it. This will ultimately shorten the time I will be quarantined. We need to help each other.

Monday, March 16, 2020

What COVID-19 Means for Me....

Hello. My name is Kylee and this is how I left my house today.
You see, there's a pandemic of Corona Virus/COVID-19 occurring right now and it could become a very bad thing if I was to contract it. You say "you're young, you'll be fine, you're overreacting", well, actually, I'm not.
See, I have two autoimmune diseases. I take several immune modulating and immuno compromising medications. For people who don't know what these mean, it means that my body thinks that my gastrointestinal system and joints are invaders and send inflammatory cells out to fight these body parts and, in turn, it makes me very sick. I take medications to, very bluntly, turn off my immune system so my body has a fighting chance. Do you see the problem with turning off your immune system during a pandemic?
To make matters worse only one of my two autoimmune diseases are under control. This means a lot of medications and a lot of doctor's appointments. I've been on 6 different immunosuppressants in the past year, some of which are still in my system and some of which I'm still on.
I rely on you, healthy people, to keep me healthy on a daily basis. Herd immunity is a real thing for people who can't get vaccinated themselves. But this is too big. I'm sorry. I can't trust everyone else with my health this time. I can't guarantee that you've self-quarantined for the appropriate amount of time after your trip abroad or that you're not hiding symptoms as I stand behind you in line at the store.
I will be self-quarantining myself in my home for the foreseeable future. Today I had no choice. I had to pick up essential and 'just in case' medications. I had to fill up my car in case I need to get somewhere and am too sick to pump gas. All before it becomes too wide spread and I'll be forced to go without.
So do you think I'm taking things too seriously? Am I overreacting? I don't think so. 
#HighRiskCOVID19 #immunosuppressed #StayTheFHome

Monday, August 20, 2018

What Happened and What's Going On....

Hey! How are ya? Long time no talk (and other social niceties).

The truth is that I'm not doing so well. To say it's been a rough year is a bit of an understatement.
So if you feel like reading about a series of unfortunate events (not a book review) then read on as I take you down an introspect into my 2018.

It started out just like any other January. Working my butt off at my ultra exciting Phlebotomist job. I really can't complain. The patients are great, the danger pay is even greater and it seems to be something I'm extremely good at having only missed veins on a handful of patients since starting there. Until working three doubles in a row caused me to have TREMENDOUS pain in my knee. I immediately call for a doctor's appointment with the GP. He assesses, does x-rays, writes me off work and doing literally anything with my knee, figures it's a meniscus issue but, given my history, sends for a Rheumatology consult anyway. I wait a painstaking two months to see the Rheumatologist who proceeds to order an MRI, which (shocker!) shows non-specific inflammation. Long story short, I'm passed on to several other specialists who aren't even worth mentioning but ultimately I end up at a Sports Medicine Doc. Pallofemoral Pain Syndrome is the diagnosis. Orthotics, physical therapy and a specialized brace are the answer. About $1000 in uncovered medical costs and it's as good as it's gonna get.

March 27th, 11:43pm - A knock at the door. It's a police officer. He asks for my sister. My sister is 6 hours away at school. Actually he just wants to let her know her dad has died, they found her name in his apartment. She's my sister. Her dad is my dad.
My dad is dead.
Enter the whirlwind of telling my grandparents their eldest son is gone, funeral home consultations, emptying of his apartment, returning of the empties, sifting through the mountains of unpaid loans, returning the previously repossessed car, dealing with the family members who refuse to see the truth....
My father was an uncontrolled diabetic who had high cholesterol, high blood pressure and drank like it was 1920's prohibition era and he was the sole provider of bathtub gin. Needless to say, we weren't close. I lost my father when I was 12 years-old and he decided to move out of my house and leave my mother, my sister and me. I've been grieving for the father I had when I was young for 16 years. He was a very troubled man and I will spend the rest of my life balancing on a tightrope of missing him and trying not to be like him. I wish some others could see the truth.

I'm currently off on stress/sick/dealing with the mess my father left me leave. I'm hoping to be more active and write more on here about the other things I have been experiencing health wise as of late.

So that's my year in a nutshell. How's yours been?


Keep Smiling :)
- Kylee.

Thursday, June 22, 2017

5....

125 Dunlop Street
5th period French
Level 5 Cahier
75% in the class

Row/Team 5 in Literature
5 books read
85% of your final mark
5 journals filled

55 minute lunches on the caf floor
5 laughs a day
5 games of cards
5 won

5 years knowing you
5 days before I knew you were gone
5 sobs from your mom when she told me

5 years without you
It feels more like 500

I miss you Bubba.
I love you.


Friday, August 22, 2014

Your Normal Becomes Your New Normal....

"Yes your life is going to be different but it would have been different if you were born in a different country or if you had a different skin colour or if you had another zero on the end of your bank account.
But people don't dwell on these things because it's their normal."

I believe Hank Green is my spirit animal.
Definitely worth a watch

Living with a Chronic Disease: http://youtu.be/rr8wIiypS_g

Keep smiling
And fighting the good fight.
:)

Sunday, June 22, 2014

It All Changes and It All Stays the Same....

Two years ago today my world came crashing down around me. My best friend was gone, had been ripped from her newly thriving life. She was studying to become a Family and Youth Social Worker to help those who could not help themselves, much like she herself had been before she saught help mid-way through our 12th school year. I will never forget the day she told me "all of everything" as she put it.

August, 15th/2008.

I thought she was the most courageous soul ever to walk this planet. And I still do. She read me journal posts and we talked into the wee hours of the morning. I will not divulge any of the things she told me that night. These secrets will go to the grave with me as they did her.

I will also never forget the day I got the call.

June, 23rd/2012

Aly, my Aly, was gone. She would never recieve her degree. She would never call me with her "Guess what?!?!" coming before her hello, or before she even knew it was me. And she would never send me an email with that stupid little snail following her signature that I never really fully understood though she explained it so many times. Oh God I miss that little guy.

Now to the title of this post. It all changes and it all stays the same. Since my friend has been gone here are some major milestones I have encountered.
-I have quit my daycare job.
-I went back to school.
-I obtained my diploma with Honours and am now a full fledged Medical Laboratory Technician/Phlebotomist.
-I found out four days ago that I am hired on as a Phlebotomist at a major local hospital.

And who do I want to tell more than anyone? Someone I can't. The guilt has slowly started to creep back in. Both that I have done all of this went she can't and that it took her death to push me out of my comfort zone.

I speak to you directly now my Bubba. I am sorry and I am thankful and I am happy and I am sad and I am mourning and I am hopeful. I know that you know where all of these lie in my head and my heart at this very moment. Keep on doing what you do. I love you.

http://youtu.be/nkqVm5aiC28

Wednesday, April 16, 2014

It All Changes Tomorrow....

....hopefully....

Keep Smiling
        Wishing
        Hoping
        Praying
        And crossing everything you've got!!

Friday, February 21, 2014

A Fitting End....

.... to a very trying week.

Tuesday, February 4, 2014

The Universe Always Listens....


Keep smiling.
And believing
:D

Monday, February 3, 2014

Tomorrow, I Can Feel It....

Tomorrow is the day.
Although I thought today was the day.
But tomorrow feels special.
We shall see.

Keep smiling, hoping, and dreaming.
:)

Sunday, January 26, 2014

Caterpillars to Butterflies....

No truer words have ever been spoken,
For today I become a butterfly.

Keep smiling,
Fly high and beautifully my friends.
:)

Friday, January 24, 2014

Day 35 On The Alien Planet....

....and I'm not sure what to do with myself.
The job hunt has been less than prosperous and sitting in my living room is getting boring. There is only so much Price Is Right and Dr. Phil you can watch in a day without going a little stir crazy.
I have one prospect for a job that hopefully I have an edge up on. Still it's tough when you have so many people in your class that did so well.
I have faith that I will be hired soon.
Until then....

Keep Smiling!
(And applying!)
:)

Tuesday, December 31, 2013

What A Year It Has Been....

This time last year I was in a less than optimal spot. I was down, I was out and I was ready for a change.
A full year and a whirlwind blur later here I am, sitting in my same chair, waiting for the same ball to drop in Time Square.
Yet I feel different.
I feel happy, hopeful, educated.
My head is in a better place.
This past year I have learned so much. So much that sometimes I feel as if my head might explode. But it doesn't. It's just my future swimming around in there no biggie, right? WRONG! I worry if I know enough. There are so many scenarios in the real world that school just can't prepare you for. Real diseases, uncooperative patients, lineups and numbers. Oi vey....
But I can do it! I have faith! Because THIS is my job. THIS is my future. And I love it.
I love the job and skills and people that I have met over the past year.
My life is in a good spot.
Now the job hunt begins.

Keep smiling!
And Happy New Year!
:)

Friday, December 20, 2013

Well I Did It....

School is done.
Practicum is done.
Just waiting for my marks and diploma.

Keep on smiling,
Keep on graduating!
:D

Monday, November 4, 2013

Pros and Cons....

Pros of the day: Got 100% on my exam, got confirmed for my practical.

Cons of the day: Interpersonal skills for the healthcare professional is not going to be as easy as I thought, I almost got ran over by a bus.

Both a Pro and a Con: I burnt my tongue on the first Tim Horton's white hot chocolate of the year.

You win some, you loose some....

Monday, October 14, 2013

So Much To Be Thankful For....

My loving family. Ones I see everyday and ones I only just met.

My awesome friends. Near, here, and far far away.

My education for a better life. And my non-existent fear of needles. Or finals.

My health- scratch that. Free healthcare, especially on the weekend I get a raging kidney/UTI infection.

And everyone reading this.
Thank you!
:)



Sunday, September 15, 2013

Invisible Illness Week Post 4...or 7...Whatever...

Sooooooooooo I got Bronchitis this week and I didn't make it through Invisible Illness Week. It's alright. This year's posts are few and far between anyway.

But I did not want to pass up this opportunity to say HAPPY BIRTHDAY 3rd LCB!

Three years ago today I was diagnosed with Crohn's Disease and my life changed forever.

To celebrate here are some pictures of you on the day you were born.

The terrible two's are over! Hallelujah! May your third year be good to both you AND me....






Wednesday, September 11, 2013

Invisible Illness Week Post 3: Appearances....

Appearances can be confusing. They can also be misleading. If you were to see me on the street and say hello you would never know what I have or haven't been through in my life or day. In much the same way as I do not know about you. It is not until we sit down and truly discuss what makes us different (or the same) that we can understand and appreciate each-other's journeys. I'm not saying my life path is on a downward trajectory that is one day going to reach oblivion and I will have no choice but to curl up in the fetal position and die. Not at all. What I mean is that I may have more ups and downs in my life than the average person.
Take the spoon theory. I've posted a link before but for those of you that have never heard it I will briefly recap (but I suggest reading the whole thing for yourselves for the full effect).
The spoon theory says that everyone wakes up each morning with an allotment of spoons. Some have more and some have less. Those that have a chronic illness tend to have less. Every time you must perform a task you lose a spoon and once your spoons are gone you are done for the day. This isn't a major problem for most "normal" people as they have an abundance of spoons to get up in the morning, go to work, pick up the kids, make dinner and still have enough to walk the dog and clean the house. But us invisible illness sufferers have to pick and choose when things get done. If we cook dinner tonight will we be too tired to eat it? If we clean the house will we have to skip tucking our kids in to bed? Budgeting your spoons is a very delicate task.
As of late I have been very blessed with my spoon allotment. There seems to be enough to go around work, school and even some left to get ahead on homework and projects.
So next time you see me on the street don't just assume that I'm being a snob and don't want to get coffee with you. Maybe I just can't afford a spoon loss that day.

Tuesday, September 10, 2013

Invisible Illness Week Post 2: Doctors....

I owe my life to my Gastroenterologist. She single handedly brought me from a very frail, can't keep any food down, 117 pound withering mess to a healthy, enjoy (most) foods strong enough to enjoy life patient. And as much as I hate the stigma "patient" brings I'd rather be a "patient" than a "corpse" of a person that never got to enjoy her life.
Dr. P is my Gastroenterologist. She is a great doctor that truly cares for her patients. I can't count the amount of times that I have come home to a message on my machine that my labs have come back wonky and she has left a prescription at my pharmacy to correct the problem. She is very accommodating.
Take today for example. I had an appointment with her and at the end of my appointment I was mentioning that I am doing a project about Crohn's Disease for school and she gave me pictures that she had taken at my first colonoscopy to share.

My advice when dealing with an invisible illness is to find yourself a really good doctor. I have and it really does make your life that much easier.

Monday, September 9, 2013

Invisible Illness Week Post 1: Invisible....

My invisible illness is Crohn's Disease. It is  called invisible because you can't see it as you can, say the big red target that is Lyme Disease. Instead, the only way for you to know that I am different than you, your spouse, your parents or your neighbours Paul and Betty down the street is for me to tell you. 

Well here I am. All 160 lbs. of me. And I'm alright with that weight. It means I have been eating. You see quite often there are days when I don't eat. It actually gives me pain to eat. This is called an invisible symptom. And while it is invisible for you it is quite real to me. Think of it like this. Imagine you had to go about your day with a very infected finger nail. The really annoying kind that throbs, is red and you can feel your heartbeat in.  And every two hours you had to go to the sink and pour rubbing alcohol on it. While it may hurt and sting your finger while you pour and for a little while after it is what's best for your body.

This is what Crohn's is like, only 10,189,748,829 times worse.

Now imagine that fingernail is the whole right side of your abdomen, front and back, and you are coming up to the two hour mark. You are dreading even the thought of having to eat and even though you know it's not what's best for your body you skip eating anyway. This is the invisible struggle. To eat or not to eat. I ask myself this every minute of everyday. But I have been blessed as of late. Lately I have been feeling good, eating well and keeping that "finger" pain in check.

And such is the unpredictable and sometimes irrational life of a Crohnie....

:)