Monday, September 5, 2011

Remicade Fails, Hospital Stays and Congratulations, Summer's Over....

So my second last post was a bit of a jinx I believe. The one about the third Remicade working. Well, it didn't. In fact it made me so bad that I ended up in the hospital for 3 days.
I got the Remicade on Wednesday(August 17th) afternoon and felt OK until that night. My legs always hurt afterwards but they were SO BAD that night and on Thursday and Friday. By Saturday my right side and back were in a bit of pain but not unbareable. But on Tuesday I woke up to nausea, vomiting and extreme dizziness to the point of almost passing out. I stayed home from work and slept for most of the day and went to bed(hopped up on pain meds) hoping to be better the next morning and maybe I just had a virus.
By Wednesday morning I was in so much pain I went to emerge and they hooked me up to Morphine for the pain and Tachycardia and fluids for the dehydration I had gotten overnight. They started out telling me that they would just give me an ultrasound to see what the problem was, but the internist doctor talked to me and the Cat Scan and Gastrolux were soon to follow. And if you've had that stuff you know how bad it is. Especially when you are extrememly nauseous. I only ended up getting 1 1/2 cups of 2 done and I went for the scan. When I got back from the scan they told me they would be admitting me.
So I was admitted to a room with only one other extremely senile lady who didn't know what day it was so she didn't really bother me. She wasn't even there for most of the days anyway so it was like having a private room. I stayed from Wednesday morning to Friday morning and in that time I had ‎7 blood tests, 4 x-rays, a CT scan, ultrasound, 6 rounds of Morphine, 1 major allergic reaction, 48 hours of nothing but liquids and IV nutrition, a few rounds of anti-biotics I get released with a diagnosis of ya, it was problably an infection. Nothing showed on any of the tests so they told me I could go home if I wanted to which I said "HECK YES!!!!" It wasn't that I didn't like being in the hospital it was just that I hadn't eaten anything since that Sunday night except jello and apple juice and my flares usually last a week to ten days so I was starting to feel hungry for more than they could offer there so I opted to come home. I was discharged and home early Friday afternoon and continued to get better and by Sunday night into Monday I was pretty much 100%.
I think Remicade is not working for me as this was my worst reaction to date. The next one might really send me for a flare. I have a Gastro appointment tomorrow so we'll see what comes of it. I think I mght be in for a surgery in my VERY near future....
As a last homage to my hospital stay here are my pics. WARNING: Most of these are from when I was high off of Morphine so ya....

Just eatin' my Jell-O....


 Finally go a shower....


Sister visiting....



All of my cards from my kidlets....


My stockpile of liquid foods....


My balloons my loverly mama brought me!
My crazy pole!


Where that pole leads. To the itchiest and most sore IV site EVER!!!!!


My TV/Computer/phone combo type deal that I woudn't live without....



Juuuuuust a little high....

P.S. Summer's over which is both good and bad at the same time....