-Never be too far from a bathroom.
-People don't understand. And can be mean.
-Healthy people don't realise how good they have it.
-Working is a privilege.
-Friends are good. They help you through. But if they pressure you outside of your healthy zone you don't need them.
-The best way to learn about your illness is through doctor dramas.
-Sleep is good but resting will suffice.
-Needles are not as scary as they used to be.
-Neither are IVs.
-But 24 gauge needles hurt less.
-But 24 gauge needles hurt less.
-Prednisone is both good and bad. But I will endure the side effects to be pain free.
-I hate pills with a passion. Big or little. I hate them all.
-Barium was invented by someone who never ever ever had to have nuclear imaging.
-It's better to eat smaller meals rather than larger ones.
-Drink a lot. But no alcohol. Water is best but Ginger Ale settles stomachs.
-Pride and modesty go out the door when gastroenterologists get involved.
-Bad days are bad but good days are better.
-Bad days are bad but good days are better.
-While gaining momentum in the world Crohn's Disease will never get as much publicity as cancer. Which makes me sad.
-I'm not the only one with this disease but I am the only one who deals with it in the way I do.
-I realise that over half of people diagnosed with severe Crohn's Disease have to have surgery within 5 years of diagnosis. And that the odds are not in my favour.
-If you can't handle it try harder.
-I will relapse. It is inevitable. And I am prepared and OK with that.
-Know my limits and accept my new reality. It's permanent.
-Crohn's Disease doesn't have to control your life.
I would now like to take just a minute to thank everyone who has been following along with me this Invisible Illness Week. I know a lot of you have chronic illnesses yourself. I speak for everyone that lives day in and day out with pain and a social stigmatism because they are different. We are saying, we are just like everyone else. We work. We have bills. We love. We have families that would do anything for us. Even more if anything. They take us to appointments and hold our hand in the hospital. We couldn't live without them.
Recently I stumbled upon a song by the band "FUN". It's called "Carry On" and the end of the song is what really strikes a cord with me. The lyrics are....
"....Cause we are
We are shining stars
We are invincible
We are who we are
On our darkest day
When we’re miles away
Sun will come
We will find our way home
If you're lost and alone
Or you're sinking like a stone
Carry on
May your past be the sound
Of your feet upon the ground
Carry on
Carry on, carry on"
We are shining stars
We are invincible
We are who we are
On our darkest day
When we’re miles away
Sun will come
We will find our way home
If you're lost and alone
Or you're sinking like a stone
Carry on
May your past be the sound
Of your feet upon the ground
Carry on
Carry on, carry on"
These are our lyrics. These are our fights. This is our daily struggle.
So to end off this week I'd like to share a little inspirational video I whipped up this afternoon. I hope it inspires you to keep fighting. See you next year Invisible Illness Week!
