But that was a year ago and I just wanted to update my status as of today. I'm not as sick as I was 365 days ago but I am certainly nowhere near where I should be as an individual living with active Crohn's Disease. Let's see. Last year vs. this year. I started Prednisone the day I was diagnosed(a rather high dose) and tapered and after five and a half months got off of it only to end up back in the emergency room and that led to being put onto Entocort(like Prednisone but more concentrated into time realease capsules for my gut) which I am still on today(and I should have been done in mid-late April). I started Imuran on a low dose in December of last year and am on a greater dose with monthly blood tests today. Of all my drugs I take I hate this one the most. I think it messes with my brain and I have a really hard time remembering anything. I also started Remicade in July of this year. I think it doesn't work so well for me because everytime I get an infusion I end up in a flare. And it makes me catch every little cold or flu. Case in point the Strep Throat/Ear Infection combo I am currently battling....
My Future: I would like to get off all steroids including Entocort. Get off of Imuran. Continue with Remicade if it is going to start working and not make me worse. Avoid surgery if at all possible unless it comes down to no other option. I am also having another Colonoscopy on September 29th to see what kind of progress(if any) I have made. This week I am also having a bone scan done(to make sure the steroids haven't completely fried my bones) and a kidney ultrasound because they are finally now listening to my complaining about the pain in my back. My Gastro is also now testing me for Lupus because so many of the symptoms I am having are very coincidental with Lupus(extreme fatigue, bone and joint pain, the digestive symptoms, red face rash, throat rash, and photosensitivity) So we'll see how this all goes, it's a process....
On that note....
