Tuesday, October 11, 2011
Monday, October 10, 2011
Gobble! Gobble!
In light of it being Thanksgiving Day I thought I would share all of the things I am thankful for.
- I am thankful for my family both here and gone.
- I am thankful for my friends both near and far.
- I am thankful for the wealth and comfort I can indulge in and realize not everyone has as much as I do.
- I am thankful that I know when I shut my door at night I am safe.
- I am thankful for my health, as bad as it is I know that some are suffering a lot more than me.
- I am thankful for my ability to recognise what is right and to try my best to fix what is wrong.
- I am thankful for my talents and know that on any day they could be taken away.
- I am thankful for the youthfulness that is around me everyday and wouldn't trade it for the world.
- I am thankful that I am loved.
Friday, October 7, 2011
Monday, October 3, 2011
How Sweet It Is....
♪♫Everybody sayin' whoa-o-o-o-oa how sweet it is......"♫♪
What the heck!? I don't even like Tim McGraw!?!? But this song makes me SING!!!! :O)
http://www.youtube.com/watch?v=9gAnSPp54L4
What the heck!? I don't even like Tim McGraw!?!? But this song makes me SING!!!! :O)
http://www.youtube.com/watch?v=9gAnSPp54L4
Sunday, October 2, 2011
Hmmmm... That Can't Be Good....
So I fell down the stairs last night. Pretty much all 14, uncarpted, wooden, unforgiving stairs. I got my pointer and middle fingers stuck in the hand rail and pulled them out of joint but they are better today. That's going to be good for the arthritis....
I bruised my top of my foot, ankle and all round my shin pretty bad though on account of whacking them all simultaneously and then continually all the way down those 14 stairs. Needless to say those slippery socks are going in the garbage. Painkillers, ice and rest for me! G'night!
I bruised my top of my foot, ankle and all round my shin pretty bad though on account of whacking them all simultaneously and then continually all the way down those 14 stairs. Needless to say those slippery socks are going in the garbage. Painkillers, ice and rest for me! G'night!
Thursday, September 29, 2011
I Know I'm Kind of Out of It, But I Thought You Just Said....
....I look better!?!? After all of that? A three day stay in the hospital, all of those tests, a colonoscopy and all of that pain and I'm b-b-b-better!?!? Don't get me wrong, it's not like I WANT something to be wrong with me but I most definitely want an answer for my pain! To Be Continued....
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As for my colonoscopy, what a sinch! I've said it before and I'll say it again the prep is the worst part. Having your innards come blasting through your rear-end with the force of a potato being shot through a spud canon is not my ideal morning constitutional(or in this case morning and/or afternoon and/or middle of the night constitutional....)
Step 1: Ducolax aka "Oh God make the pain STOP!!!!". The worst part for me is the two Ducolax pills you have to take before bed that are supposed to give you 12 hours before "anything happens". I am lucky if I get 3 hours. I learned my lesson last time. I learned that I can only handle 1 pill, not 2. If I take 2 the pain is almost enough to make me want to curl up and die but 1 is actually pretty manageable. My mom thinks I could have got away with none of these but I did not want to move onto Step 2 without this step. You'll see why in une minute....
Step 2: Pico-Salax aka "the night you will pee from your butt". If you've never had this stuff then you are obviously oblivious to it's powers. Your mid-section will make noises you previously thought only a garberator eating a fork then a spoon for dessert could make. It's a good thing you are only allowed liquids for the whole day before. I think my final count was 37 freezies, 2 cups of chicken broth, 4 Powerades and 2 bottles of water all in a 24 hour period. My advice, this is the "stay close to the bathroom because you only have 15 seconds to get there" stage....
Step 3: The morning of aka "the easy but man am I hungry" step. Take some more Pico-Salax when you first wake up. Drink until two hours before your appointment. Go to the office. Wait while you watch all of the food commercials go by on the waiting room television. Get called in. Take all necessary measurements. Get changed into hospital gown. Talk to Anesthesiologist. Get IV. Roll into Operating Theatre. Have a whiff of oxygen. Get some happy drugs. Get the GOOD drugs. Listen to Alanis Morrisette as you drift away. Wake up. Think "When are they going to do this already?". Realize that they are done. Fart a lot. Have some juice. Fart some more. Remove IV. Get dressed. Fart again. Go home. Have another nap. Fart just a few more times for good measure.... <- By far the easiest part... ;D
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As for my colonoscopy, what a sinch! I've said it before and I'll say it again the prep is the worst part. Having your innards come blasting through your rear-end with the force of a potato being shot through a spud canon is not my ideal morning constitutional(or in this case morning and/or afternoon and/or middle of the night constitutional....)
Step 1: Ducolax aka "Oh God make the pain STOP!!!!". The worst part for me is the two Ducolax pills you have to take before bed that are supposed to give you 12 hours before "anything happens". I am lucky if I get 3 hours. I learned my lesson last time. I learned that I can only handle 1 pill, not 2. If I take 2 the pain is almost enough to make me want to curl up and die but 1 is actually pretty manageable. My mom thinks I could have got away with none of these but I did not want to move onto Step 2 without this step. You'll see why in une minute....
Step 2: Pico-Salax aka "the night you will pee from your butt". If you've never had this stuff then you are obviously oblivious to it's powers. Your mid-section will make noises you previously thought only a garberator eating a fork then a spoon for dessert could make. It's a good thing you are only allowed liquids for the whole day before. I think my final count was 37 freezies, 2 cups of chicken broth, 4 Powerades and 2 bottles of water all in a 24 hour period. My advice, this is the "stay close to the bathroom because you only have 15 seconds to get there" stage....
Step 3: The morning of aka "the easy but man am I hungry" step. Take some more Pico-Salax when you first wake up. Drink until two hours before your appointment. Go to the office. Wait while you watch all of the food commercials go by on the waiting room television. Get called in. Take all necessary measurements. Get changed into hospital gown. Talk to Anesthesiologist. Get IV. Roll into Operating Theatre. Have a whiff of oxygen. Get some happy drugs. Get the GOOD drugs. Listen to Alanis Morrisette as you drift away. Wake up. Think "When are they going to do this already?". Realize that they are done. Fart a lot. Have some juice. Fart some more. Remove IV. Get dressed. Fart again. Go home. Have another nap. Fart just a few more times for good measure.... <- By far the easiest part... ;D
Monday, September 26, 2011
Just Another Manic Monday....
....although Tuesdays are just as bad for me. You know not quite at/over the mid-week Hump. One of my daycare parents actually pointed out to me today that Wednesdays and Thursdays are worst because Fridays are just beyond reach. I don't know why but Thursdays have always just been a great day for me. You'd think it would be Fridays but nope, Thursdays.
Bored yet? I am. Colonoscopy prep tomorrow night, Wednesday liquid diet and more prep, then the big show on Thursday. Told ya. Thursdays rock. I get the day off to sleep! ;)
Bored yet? I am. Colonoscopy prep tomorrow night, Wednesday liquid diet and more prep, then the big show on Thursday. Told ya. Thursdays rock. I get the day off to sleep! ;)
My Thursday afternoon....
Saturday, September 24, 2011
Thursday, September 15, 2011
What A Year It Has Been....
This time last year I was laying in a hospital bed, still groggy from anethesia, listening to my gastroenterologist telling me that my life would never be the same. I have Crohn's Disease. She had performed a colonoscopy/gastroscopy proceedure on me and had come to the relization that I was very ill....
But that was a year ago and I just wanted to update my status as of today. I'm not as sick as I was 365 days ago but I am certainly nowhere near where I should be as an individual living with active Crohn's Disease. Let's see. Last year vs. this year. I started Prednisone the day I was diagnosed(a rather high dose) and tapered and after five and a half months got off of it only to end up back in the emergency room and that led to being put onto Entocort(like Prednisone but more concentrated into time realease capsules for my gut) which I am still on today(and I should have been done in mid-late April). I started Imuran on a low dose in December of last year and am on a greater dose with monthly blood tests today. Of all my drugs I take I hate this one the most. I think it messes with my brain and I have a really hard time remembering anything. I also started Remicade in July of this year. I think it doesn't work so well for me because everytime I get an infusion I end up in a flare. And it makes me catch every little cold or flu. Case in point the Strep Throat/Ear Infection combo I am currently battling....
My Future: I would like to get off all steroids including Entocort. Get off of Imuran. Continue with Remicade if it is going to start working and not make me worse. Avoid surgery if at all possible unless it comes down to no other option. I am also having another Colonoscopy on September 29th to see what kind of progress(if any) I have made. This week I am also having a bone scan done(to make sure the steroids haven't completely fried my bones) and a kidney ultrasound because they are finally now listening to my complaining about the pain in my back. My Gastro is also now testing me for Lupus because so many of the symptoms I am having are very coincidental with Lupus(extreme fatigue, bone and joint pain, the digestive symptoms, red face rash, throat rash, and photosensitivity) So we'll see how this all goes, it's a process....
On that note....
But that was a year ago and I just wanted to update my status as of today. I'm not as sick as I was 365 days ago but I am certainly nowhere near where I should be as an individual living with active Crohn's Disease. Let's see. Last year vs. this year. I started Prednisone the day I was diagnosed(a rather high dose) and tapered and after five and a half months got off of it only to end up back in the emergency room and that led to being put onto Entocort(like Prednisone but more concentrated into time realease capsules for my gut) which I am still on today(and I should have been done in mid-late April). I started Imuran on a low dose in December of last year and am on a greater dose with monthly blood tests today. Of all my drugs I take I hate this one the most. I think it messes with my brain and I have a really hard time remembering anything. I also started Remicade in July of this year. I think it doesn't work so well for me because everytime I get an infusion I end up in a flare. And it makes me catch every little cold or flu. Case in point the Strep Throat/Ear Infection combo I am currently battling....
My Future: I would like to get off all steroids including Entocort. Get off of Imuran. Continue with Remicade if it is going to start working and not make me worse. Avoid surgery if at all possible unless it comes down to no other option. I am also having another Colonoscopy on September 29th to see what kind of progress(if any) I have made. This week I am also having a bone scan done(to make sure the steroids haven't completely fried my bones) and a kidney ultrasound because they are finally now listening to my complaining about the pain in my back. My Gastro is also now testing me for Lupus because so many of the symptoms I am having are very coincidental with Lupus(extreme fatigue, bone and joint pain, the digestive symptoms, red face rash, throat rash, and photosensitivity) So we'll see how this all goes, it's a process....
On that note....
Saturday, September 10, 2011
Lesson of the Day....
....when taking twin two-year olds to an amusement park, don't make them wait in hour long line ups.
Now you know.
Now you know.
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